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  • What is Rare 2030?
  • How It Works
  • Who is involved?
    • Project partners
    • Panel of Experts
    • Research Advisory Board
    • Young Citizens
    • Rare Barometer Voices
  • Key Events
    • Feb 2021 – Policy Conference
    • May-Nov 2020 – Regional Conferences
    • 28 Oct 2020 – Online Young Citizen Conference Fall Debate
    • 26 Oct 2020 – ERN Plenary Event
    • Sept – Oct 2020 – EU level Backcasting workshop
    • 7 – 8 July 2020 – Young Citizen Conference
    • 14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
    • 7 Nov 2019, Brussels – Panel of Experts Workshop
    • 18 May 2019, Bucharest, Romania – Knowledge Base Workshop
  • Our Work
    • Recommendations
    • Rare2030 policy scenarios
    • Trends
    • Knowledge base
    • Further deliverables
  • Contact
    • Newsletter sign up
  • Have any questions?
  • [email protected]
  • 234-235-5678

  • What is Rare 2030?
  • How It Works
  • Who is involved?
    • Project partners
    • Panel of Experts
    • Research Advisory Board
    • Young Citizens
    • Rare Barometer Voices
  • Key Events
    • Feb 2021 – Policy Conference
    • May-Nov 2020 – Regional Conferences
    • 28 Oct 2020 – Online Young Citizen Conference Fall Debate
    • 26 Oct 2020 – ERN Plenary Event
    • Sept – Oct 2020 – EU level Backcasting workshop
    • 7 – 8 July 2020 – Young Citizen Conference
    • 14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
    • 7 Nov 2019, Brussels – Panel of Experts Workshop
    • 18 May 2019, Bucharest, Romania – Knowledge Base Workshop
  • Our Work
    • Recommendations
    • Rare2030 policy scenarios
    • Trends
    • Knowledge base
    • Further deliverables
  • Contact
    • Newsletter sign up

  • Contact Us

The Rare2030 project is co-funded by the European Union Pilot Projects and Preparatory Actions Programme (2014- 2020). This website is part of the pilot project PP-1-2-2018-Rare 2030. The content represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission or any other body of the European Union.


For more information
contact: Anna Kole
[email protected]
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