Sept - Oct 2020 - EU level Backcasting workshop

EU Level Backcasting Workshops: ERN coordinators, HCPs, patient advocates (ePAGs) and key representatives of European consortia and institutions discuss the policies around the future of ERNs as a key component of the Rare 2030 project recommendations. A staggered series of online brainstorming workshops addressed the following topics:

Sept 21st: Governance and strategic positioning of ERNs

Sept 28th : Integrating ERNs to national systems and framework

Sept 29th: Role of ERNs in virtual care delivery and cross-boarder healthcare

Oct 12th: ERNs, research, and the data ecosystem of the future

Outputs of these workshops were presented in a final plenary conference where participants including key decision makers were provided opportunities to ask questions and provide feedback.

See the preliminary results