Trends that will change the future for people living with a rare disease in the next decade
Through a series of consultations held during meetings in 2019 (the EURORDIS Membership Meeting, the Panel of Experts Workshop, the EURORDIS Council of National Alliances and Council of European Federation meeting), the Rare2030 Panel of Experts has summarised trends and drivers of change that have been identified as instrumental to shaping the future of rare disease policy.